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Messages - DJC

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1
Introduce yourself / Re: Hello
« on: November 25, 2017, 11:46:52 AM »
Thanks for sharing! Welcome to board.

2
Research / Take part in tremor research
« on: November 09, 2017, 12:33:36 PM »
Plymouth University are looking to recruit participants for an exciting new dissertation research project!

Are you interested in a possible new treatment for essential tremor?

Would you like to try a new strategy using Kinesiology tape?

Yes? Then you may be interested in our new and innovative research.

STUDY TITLE:

"Investigating the impact of home applied kinesiology tape in essential tremor and functional ability. A feasibility pilot randomized control trial."

What is the study about?

As there is currently very little treatment to help those with essential tremor manage their symptoms, this study aims to investigate whether kinesiology tape is effective in improving the performance and ease of functional tasks and if it could be used to dampen down essential tremor and help sufferers cope with symptoms.

To take part you must:

Be between 18-65 years old.
Have a diagnosed action tremor affecting your dominant hand.
Unfortunately, if you suffer from any of the following health conditions, you will be unable to take part in this study:

Heart failure
Upper limb deep vein thrombosis
kidney problems
cancer
diabetes
decreased skin integrity
allergy to acrylic
any kind of current or previous injuries to your hand.
Your participation will be greatly appreciated. You would be requested to answer a set of questions via the internet and if you are eligible to take part in the study, you will be sent a package containing a pre-cut Kinesiology tape and instructions, 3 simple handwritten tasks and a questionnaire. You will need to wear the tape for 48 hours, then you will be asked to return the questionnaire and the handwritten tasks back to us via a free post envelope.

The study is entirely voluntary and you may withdraw at any time.

Any information provided will be kept strictly confidential. (Data Protection Act 1998)

if you wish to participate please follow the link below:

https://www.esurveycreator.co.uk/s/TremorResearch

Any additional questions then please don’t hesitate to contact using the email: tremorresearch@live.plymouth.ac.uk

We look forward to hearing from you.

3
Get involved in National Essential Tremor Awareness month 2018! / NETA 2018
« on: November 06, 2017, 05:54:46 PM »
March 2018 is National Essential Tremor Awareness (NETA) month and the NTF wants to make next year's bigger than ever!

NETA month started in the USA, by the IETF to raise awareness of essential tremor and has since been growing from strength to strength. Last year was the NTF's first year of getting involved and we ran a number of successful events. 

For NETA 2018 we are looking for more people to support us and raise awareness about essential tremor. This could involve talking to your loved ones about essential tremor to actively fundraising for the NTF.

Contact us on enquiries@tremor.org.uk if you would like to get involved!

4
Introduce yourself / Re: Introduction
« on: September 20, 2017, 03:31:06 PM »
Hi Ken Welcome to the forum!

5
Introduce yourself / Re: Introduction
« on: August 23, 2017, 01:51:45 PM »
Hi Jane

Welcome! I will find out in more detail :)

D

6
Research / Take part in a phone app study to reduce tremor.
« on: July 13, 2017, 02:37:21 PM »
I am 77 years old and had for three years been suffering progressively from hand tremors. These had developed to a state where I was unable to carry a cup of coffee across a room without spilling it. My son, who has studied Tai Chi for more than 20 years and is a computer programmer combined these two skills to develop 'Smooth Move'.

Smooth Move is an app for Android Phones that has been successful in reducing my tremor to the point that without thinking, I can now carry coffee across the carpeted lounge without provoking the wrath of my wife. This is not quite a 100% fix though. It is still the case that occasionally in stressful situations, for instance while standing, holding a book or piece of paper, and addressing a group of people, I realise that my hand has started shaking a bit. At the point of this realisation though I can now exercise some control and reduce the tremor.

My son and I are looking for volunteers who will use Smooth Move regularly over a period of 6 months to see if this therapeutic approach is a more widespread remedy than just in my isolated case. We are grateful to The Tremor Foundation for allowing us to publicise this approach to what I am fully aware is a quite debilitating condition.

Participants in this trial will need an Android smartphone

Any Android phone from the last 5 years should be fine

The app is available at no cost for download to Android phones on https://play.google.com/store/apps/details?id=smooth.move.live

It takes maybe 30 minutes to an hour to 'play' with the app and get to where you are ready for daily practice

An exercise set lasts around 7 minutes

Video of the type of movements involved : https://www.youtube.com/watch?v=gtXWEDEArY8

Video of the exercise set : https://www.youtube.com/watch?v=3G5Dm07tZAc

The exercise should be practised daily

The set is repeated one, two or three times per day

Users can choose which they feel is best for them according to their daily routines –

I initially practised two to three times a day, and after 6 months switched to once a day

Odd days off are fine, but regular practice is essential

Within a 6 month study time

The first signs of benefit are anticipated after around 3 months

A clearer indication on the level of any benefit should start to accrue at 6 months

Our study seeks to cover sufferers of essential tremor involving the hands

Any other participants would be welcome, but we have no  indication if they would be helped

We have a basic website which volunteers could read more on

http://www.smoothmoveapp.com/

Thus it has no cost to participate, unless a volunteer needs to buy an Android smartphone to take part. It also doesn't take much time. I have no doubt that the time I invested was well rewarded.

We will be supporting volunteers to get started, answering questions as they arise, and gathering results data. We would also be interested if volunteers could help us refine the app to make it as easy to use as possible.

If you would like to participate please contact smoothmoveapp@gmail.com.

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