Recent Posts

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Introduce yourself / Hello- 21 years old
« Last post by arycuh on January 18, 2018, 08:12:39 PM »
Hello, my name is Chloe, I'm 21 years old and I live in the North West (England.) I was officially diagnosed with Essential Tremor when I was 13 but I have had it for as long as I can remember! I am currently taking a medical year out of university because of how much it affected my studying etc. I have it in pretty much every part of my body, the worst being my legs and hands!
I have recently started a blog about coping with Essential Tremor if anyone wants to look:

https://mytremorsandme.wordpress.com/

:)
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Introduce yourself / Re: Hello there
« Last post by brileo on January 18, 2018, 11:07:13 AM »
Hi, I am experiencing intermittent hand shaking, at it's worst when I first wake up, any advice/suggestions gratefully received.
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Introduce yourself / Re: Hello
« Last post by Sue on January 14, 2018, 09:56:08 AM »
Hi Mike
I've only just joined the Forum and so only just seen your post. I'm so sorry you were having a bad day the other week and do hope you are feeling more positive now
Sue
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Introduce yourself / Deep brain stimulation
« Last post by Sue on January 14, 2018, 09:54:03 AM »
Hi
I'm Sue and have been diagnosed for about 7 years. I have tremor in both hands and the usual, social activities that are made more difficult with the tremor, are becoming worse for me. I attend the London neuro hospital and for various reasons I can not take medication for this condition and the consultant is discussing DBS with me. I wondered if anyone else had undergone DBS and how they have found the results?
Thanks so much
Sue
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Get involved in National Essential Tremor Awareness month 2018! / Re: NETA 2018
« Last post by Mike d on January 03, 2018, 01:10:34 PM »
Hello, I live on the East Coast of Essex and I am retired and would like to be involved someway in the Awareness month. I am not the most outgoing of personalities, but would like to be involved in this as it directly affects me.
       Kind Regards,
                           Mike Day
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Introduce yourself / Hello
« Last post by Mike d on January 02, 2018, 09:10:17 PM »
My name is Mike and I have had ET in my hands for the last 20 years plus. I am 67 years old and in reasonably good health apart from the tremor. Back in the mid 90's I saw a Professor Finlay at the Romford Hospital who at the time was quite a leading figure in the treatment of tremors. I was prescribed Primadone which I commenced at a quarter tablet and subsequently increased the strength. Although it did marginally reduce my tremor I stopped taking it because the side effects made me feel so spaced out and I needed to work. Propranolol seemed to do nothing for the tremor but again made me feel very light headed and sleepy and again I stopped taking them.
  In 2015 during a routine visit to my GP I brought up the subject of my tremor and was referred to a Neurologist at Colchester Hospital and was again recommended to take Primadone or Propranolol. When I explained the effects they had on me, I was told it was them or nothing.
  The tremor is now deteriorating to the effect that I cannot with confidence go out alone, my wife having to carry drinks etc. to a table and cutting and eating food is now becoming a chore.
  I approached my GP about the Ultrasonic treatment that was done at the London Hospital, but 9 months on and I am still waiting for an acknowledgement. The thought of invasive surgery leaves me very cold!
  In the grand scheme of things, having shaky hands seems a very small issue but the frustration when trying to do simple day to day tasks is immense.
  As you may gather I am having a bad day.
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Introduce yourself / Re: Hello there
« Last post by JC on December 30, 2017, 03:48:38 PM »
Hi
JohnC here

I was first diagnosed with ET roughly 6-7 years ago when I was also diagnosed with Type 2 Diabetes

Over those 6-7 years the ET has worsened progressively, I have had these 'shakes' confirned as non Parkinson by both my GP and ttwo specialists bth neurologists one from Addenbrokes hospital

In recent weeks I can no longer make a legible signature and can not pick up a full cup, glass without spilling it, a screwdriver [not the drink] with a slot in the head is a no-no

Sometimes my words duplicate the letters

ps I am 78 yoa and take Gabapentin
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Introduce yourself / Re: Essential Tremor
« Last post by Jackie on December 26, 2017, 11:35:34 AM »
Hi Geri and welcome to the group.

At present there is no official support group in Southampton. I did though arrange a meeting there recently which you may have read about.

I'm planning a follow up meeting February 17th possibly Romsey or around Southampton. would this be something that may interest you? If so I can include you in the email updates. My email is jackie@tremor.org.uk

Kind Regards,
Jackie
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Introduce yourself / Re: Essential Tremor
« Last post by Geri on December 26, 2017, 10:52:12 AM »
Hi Jackie
I'm a newbie here, can u tell me if there is a support group for the Southampton area?
Gerixxx
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Introduce yourself / Re: Hello there
« Last post by macphisto73 on December 13, 2017, 09:04:53 PM »
Hi Liz,

Welcome. Newbies together!

I'm also very disappointed at the lack of knowledge and understanding of ET since I was first diagnosed. I have a more empathetic GP than you by the sounds of things, but I've not been given suggestions as to alternatives to try besides the beta blockers I've been on for all these years. What I don't get is that I see figures of 1 million people in the UK being affected by ET and yet I've struggled to find anything online about non-invasive trials or treatment in this country.

Paul
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