Recent Posts

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11
Introduce yourself / Re: Essential Tremor
« Last post by Kitty on November 21, 2017, 07:48:59 PM »
Better late than never Jackie! Presumably by now you have hit the big time with your interview!  Sorry it has taken a while to respond.  Keep up the great work.

Take care
Kitty xx
12
Introduce yourself / Re: head tremor
« Last post by Kitty on November 21, 2017, 07:44:54 PM »
Hi Sharon

Thank you for your post. Being the mother of a child with a tremor in his hands I see the difficulties he has, quite often the simple things like writing, texting, fastening laces, carrying full cups etc.  How have you managed with your difficulties?

Take care

Kitty
13
Introduce yourself / head tremor
« Last post by Beingyoung on November 14, 2017, 05:11:15 PM »
Hello everyone,my name is sharon i am 43 and have suffered with a head tremor for 30 years,would love to find out if people have the same difficulties as me....
14
Introduce yourself / Pain
« Last post by Chrissmith86 on November 14, 2017, 04:17:30 PM »
Hi everyone.

Was after some advice about ET. I have been a suffer for as long as I can remember. ET has only affected both hands but more so my right. Recently I have been getting pain in my hands mainly around the knuckles and then a sudden uncontrollable shake (more than normal). Is there anyone else who has experienced the same?
15
Research / Take part in tremor research
« Last post by DJC on November 09, 2017, 12:33:36 PM »
Plymouth University are looking to recruit participants for an exciting new dissertation research project!

Are you interested in a possible new treatment for essential tremor?

Would you like to try a new strategy using Kinesiology tape?

Yes? Then you may be interested in our new and innovative research.

STUDY TITLE:

"Investigating the impact of home applied kinesiology tape in essential tremor and functional ability. A feasibility pilot randomized control trial."

What is the study about?

As there is currently very little treatment to help those with essential tremor manage their symptoms, this study aims to investigate whether kinesiology tape is effective in improving the performance and ease of functional tasks and if it could be used to dampen down essential tremor and help sufferers cope with symptoms.

To take part you must:

Be between 18-65 years old.
Have a diagnosed action tremor affecting your dominant hand.
Unfortunately, if you suffer from any of the following health conditions, you will be unable to take part in this study:

Heart failure
Upper limb deep vein thrombosis
kidney problems
cancer
diabetes
decreased skin integrity
allergy to acrylic
any kind of current or previous injuries to your hand.
Your participation will be greatly appreciated. You would be requested to answer a set of questions via the internet and if you are eligible to take part in the study, you will be sent a package containing a pre-cut Kinesiology tape and instructions, 3 simple handwritten tasks and a questionnaire. You will need to wear the tape for 48 hours, then you will be asked to return the questionnaire and the handwritten tasks back to us via a free post envelope.

The study is entirely voluntary and you may withdraw at any time.

Any information provided will be kept strictly confidential. (Data Protection Act 1998)

if you wish to participate please follow the link below:

https://www.esurveycreator.co.uk/s/TremorResearch

Any additional questions then please don’t hesitate to contact using the email: tremorresearch@live.plymouth.ac.uk

We look forward to hearing from you.
16
Get involved in National Essential Tremor Awareness month 2018! / NETA 2018
« Last post by DJC on November 06, 2017, 05:54:46 PM »
March 2018 is National Essential Tremor Awareness (NETA) month and the NTF wants to make next year's bigger than ever!

NETA month started in the USA, by the IETF to raise awareness of essential tremor and has since been growing from strength to strength. Last year was the NTF's first year of getting involved and we ran a number of successful events. 

For NETA 2018 we are looking for more people to support us and raise awareness about essential tremor. This could involve talking to your loved ones about essential tremor to actively fundraising for the NTF.

Contact us on enquiries@tremor.org.uk if you would like to get involved!
17
Hi Kitty,

Admittedly a bit late responding here! Thanks for your interest. My primary work is regarding the elimination of tremor related issues when using a computer mouse. Lots of folks, my grandfather included, struggle with tremor sending the cursor all over, and additionally with their fingers constantly clicking the mouse buttons unintentionally.

I created SteadyMouse, a software program to solve this problem. You can see a little demo clip of it in action here if you like: https://twitter.com/steadymouse/status/890794753637326848

The company site is https://www.steadymouse.com and contains a lot more detail. You are welcome there any time.

Cheers,
Ben
18
Introduce yourself / Re: Introduction
« Last post by DJC on September 20, 2017, 03:31:06 PM »
Hi Ken Welcome to the forum!
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Introduce yourself / Re: Introduction
« Last post by KenL on September 19, 2017, 08:33:29 PM »
Hi Jane, I took part in the clinical trial of MRI-guided focussed ultrasound in June.    Treatment took place at St. Mary's Paddington and was supervised by Dr. Bain.    Currently, just 1 side of the brain is treated and for me, the treatment has been a great success.    My left hand (I am left-handed) continues to be tremor-free and, as you can imagine, it is such a freedom to eat and drink without spillages and to feel that I can carry a full mug from  A to B confidently.    The treatment is fairly painless - the most painful part is the fitting of the water-cooled helmet to keep your head cool during the time that the ultrasound is being fired at your brain.    The treatment does involve having your head shaved so you would need to investigate wigs beforehand.     Side effects were:    * feeling more tired especially after busy days     * some loss of balance - I have not risked riding my bike since the treatment.
Contact me if you want to know more.    Ken
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Introduce yourself / Re: Essential Tremor
« Last post by Jackie on September 14, 2017, 05:53:46 PM »
Hi Kitty,
I'm taking part in a live radio interview next Tuesday for BBC radio Solent. Talking about ET and how it affects people. One of the areas I will be mentioning is that this disorder affects children as well as adults.,I'll also be giving NTF details. Jackie (London & South East Support Group) xx
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