Recent Posts

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21
Hi Ben,

Thank you for your post!  With technology advancing and its uses becoming an integrated part of life it is wonderful to hear you are developing things to help those with tremor.

I'd love to hear more about what you do.

Kind regards

Kitty
22
Introduce yourself / Re: Essential Tremor
« Last post by Kitty on September 14, 2017, 02:40:34 PM »
Hi,

I am Kitty and I am a Trustee for the NTF.  My son was diagnosed with ET when he was 5 years old.  Life is quite often a battle to get people to understand ET and recognise the impact it can have on day to day living and education.

As a result I am now the Children Liaison Officer for NTF and aim to raise the profile of children with ET and in turn this with raise the profile of ET in adults.

If I can help in any way please feel free to give me a shout.

Take care

Kitty
23
Introduce yourself / Re: Introduction
« Last post by Kitty on September 14, 2017, 02:36:38 PM »
Hi Jane,

There is some information on the NTF website about Ultra-sound guided MRI that might answer any questions you have.

Take care

Kitty
24
Introduce yourself / Re: Hi everyone
« Last post by Kitty on September 14, 2017, 02:34:24 PM »
Welcome Gav,

Thank you for sharing your post.  If you find any useful tech ideas please share them as we'd love to hear what's out there!

Kind regards

Kitty
25
Introduce yourself / Children's Liaison Officer
« Last post by Kitty on September 14, 2017, 02:32:29 PM »
Hi All,

Welcome!

I am Kitty and I am the Children's Liaison Officers for the NTF.  My son who is almost 13 was diagnosed with ET when he was 5 years of age however I noticed it around 18 months of age.

My role is to help raise the profile of ET in children in health and education and to help provide support to parents and children with the condition. If you have any ideas or request please feel to contact me to discuss.

Take care

Kitty


26
Introduce yourself / Re: Introduction
« Last post by DJC on August 23, 2017, 01:51:45 PM »
Hi Jane

Welcome! I will find out in more detail :)

D
27
Introduce yourself / Introduction
« Last post by JANE on August 16, 2017, 02:17:54 PM »
Hi

My name is Jane and I have had essential tremor for at least ten years.  Also have Hashimotos. I have just had a normal MRI and Datscan and have bern told if it gets worse I can have DBS which I dont want.  I have learned that there is a new procedure called MRI guided ultrasound which hascbeen developed by a Dr Bain and others at Imperial Hospital and Charing Cross, London.  They have done trials.  Anyone know about this?

Jane 8)
28
Introduce yourself / Re: Essential Tremor
« Last post by Jackie on July 18, 2017, 03:14:09 PM »
Hi Alex and welcome to the online forum  :)
29
Introduce yourself / Re: Essential Tremor
« Last post by alex.stone5 on July 18, 2017, 02:54:17 PM »
Hi My name is Alex and I have had tremors in both my hands for as long as I can remember and it's spread to my voice and my left leg in the last few years. It never bothered me until I started in my new job in a chemistry lab where I handle dangerous chemicals and my tremors make it really difficult for me. Looking at different treatments at the moment but any advice is appreciated :)
30
Tremor in the workplace / Re: Sickness at work
« Last post by Gav on July 14, 2017, 03:22:45 PM »
hi Marane, I agree with MargaretB.  It's very hard when you don't know when the shakes will come on and your bosses need to understand this.

Hope it gets sorted and you can keep us up to date.
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