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My name is Ben. I have been spared so far, however my grandfather, Dr. James Gottemoller,  has dealt with Essential Tremor due to Parkinson's disease for over a decade now. It has been a long road for him, as I'm sure you can relate.

I'm a software developer at heart, who lives and breathes code, and so starting back in 2005 I developed mouse software you may have heard of, to remove the tremor motion when using a computer. I won't say the name so as to not break the solicitation rules here, but I'm sure you can find it if you like.

Anyways, I'd like to just say hello to everyone here and offer custom software engineering help to improve things for folks. I do what I can to gather up feedback on the "pain points" people have when using their computers so I can then bring improvements to bear in "software land". I will keep tabs on the forum here, so feel free to shoot me a note if there's an area with using your computer that really needs work. Cheers!
Introduce yourself / Re: Essential Tremor
« Last post by Jackie on July 07, 2017, 01:57:49 PM »
Hi i'm Jackie Farrell, retired dance teacher. Diagnosed with ET 1974 in right hand. Since then its progressed over time to both hands, head, jaw, lips and legs.
Nice to meet you all on this forum.
Introduce yourself / Essential Tremor
« Last post by Bingo23 on June 27, 2017, 04:07:22 PM »
Hello - my name is Mike and I have had an Essential Tremor, mainly in my left arm, for approximately five to six years.
Tremor in the workplace / Re: Sickness at work
« Last post by MargaretB on June 22, 2017, 11:46:22 AM »
I am familiar with the system you are describing, it multiplies the way sickness/absence is seen. If you are in a Union, I would suggest that you see your local Steward, you will find that they will have experience of the system and will no doubt have supported others going through the interview process. Good luck.
Tremor in the workplace / Sickness at work
« Last post by Merane on June 11, 2017, 11:06:34 PM »
Not sure if I am posting in the right place or if I should be doing this in the general section but here goes.

I currently work as in the Maternity unit as a Support Worker I'm also seconded to the Research team for two shifts. I four years ago I was assessed by occupational health to ensure I can fulfil my role safely. They recommended quite rightly that I no longer obtain blood samples. Apart from that and putting in some adaptions to how I work & taking me off night shifts. I was ok'd to continue working so long as I inform the shift manager on days where I feel my tremors are worse and let them know if there are any duties I feel I can't undertake. I continue to do this on a shift to shift basis & it works.

However I have had a few flare ups where my tremors have been so bad I have really struggled, and have been unable to work. These flare ups are unpredictable, I can't seem to identify a set a trigger. They can last from a few hours to a few days. Unfortunately my work has implemented a new sickness policy which works on points. The shorter time you have off the more points you get, they are trying to deter people having a few days off with colds/bugs etc. Unfortunately I have had two separate days off through my tremors in the last 6 months which has given me high points.

I have been invited to a sickness clinic for a review, with the matron & HR. I do not deal with these situations very well, I can be perfectly calm until I get in the room then nerves & stress levels hit the roof & I fall to pieces. I am scared, I might make the situation worse.
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