Author Topic: just registered  (Read 238 times)


  • Newbie
  • *
  • Posts: 1
    • View Profile
just registered
« on: February 12, 2018, 01:19:15 PM »
I have just registered somewhat belatedly.  I was diagnosed in 2008, born in 1957.  IMHO very little is known in the UK about this condition.  I am afraid it has brought about a complete end to my secretarial career of > 40 years, ironically in medical and legal work.  One thing I do know is that I will never undergo deep brain stimulation but I wish I could get strong cannabis oil as the four drugs I have tried so far have had little effect.  I am currently in receipt of PIP and ESA, the latter is due for review soon so I am collating as much information  as I can in readiness for this.  I am currently waiting for an appointment with a Brain Injury and Rehabilitation Consultant - that will prove pretty interesting.  I am  based in Bournemouth/Poole, anybody nearby?  Please feel free to get in touch.